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患者如何体验甲状腺眼部疾病

Terry J Smith1, Laszlo Hegedüs2, Ira Lesser3

  • 1Kellogg Eye Center, Department of Ophthalmology and Visual Sciences and Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, MI, United States.

Frontiers in endocrinology
|November 29, 2023
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概括

甲状腺眼病 (TED) 在所有疾病阶段都显著影响患者的生活质量,导致身体症状,情绪困扰和限制日常活动. 了解这些患者的体验对于有效的疾病管理至关重要.

关键词:
格雷夫斯的轨道病变活跃疾病是活跃的疾病.慢性疾病是一种慢性疾病.患者体验患者体验患者调查调查患者调查人们的生活质量.甲状腺眼睛疾病 甲状腺眼睛疾病甲状腺相关的眼科病变

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科学领域:

  • 眼科医生 眼科 眼科
  • 内分泌学 在内分泌学.
  • 自免疫性疾病 自免疫性疾病

背景情况:

  • 甲状腺眼病 (TED) 是一种严重的自身免疫性疾病,影响眼睛,通常导致误诊和持续的生活质量挑战.
  • 即使在TED的活跃炎症阶段已经消失后,症状也可能持续存在,并对患者产生长期影响.

研究的目的:

  • 调查甲状腺眼病 (TED) 在不同疾病阶段对患者的身体,情感和整体生活质量 (QoL) 的多方面的影响.
  • 确定被诊断为TED的个人所面临的关键挑战和经验.

主要方法:

  • 一项由62个问题组成的调查对被诊断为TED的18岁及以上的患者进行了调查.
  • 调查重点关注身体和情绪的幸福感,以及调查前两个月的质量.
  • 使用统计分析,包括千二测试,来检查报告的问题之间的相关性.

主要成果:

  • 在443名受访者中,69%的人经历了身体症状. 最常见的问题包括眼睛干燥,光敏感,眼睛凸起和眼睛疼痛.
  • 很大一部分人报告了负面的 QoL 影响:45%的人感到丧/焦虑,44%的人担心外表,49%的人感到信心下降.
  • 年轻的患者 (<60岁) 和在过去5年内被诊断的患者报告了更严重的症状和QOL下降. 阅读,开车和社交等活动经常受到限制.

结论:

  • 身体表现的TED深远影响患者的生活质量在所有的疾病阶段.
  • 医疗保健提供者需要提高对TED患者体验的认识,以改善疾病管理策略.
  • 解决TED的身体和心理社会影响对于全面的患者护理至关重要.