在临床试验中对自闭症谱系障碍但没有智力障碍的个体观察到的变化进行出口访谈的定性探索
Michael Chladek1, Claire Burbridge2, Elizabeth Gibbons2
1Clinical Outcome Assessments, Clinical Outcomes Solutions LLC, Chicago, IL, USA.
Patient related outcome measures
|November 29, 2023
概括
研究伙伴报告说,在临床试验期间,自闭症谱系障碍 (ASD) 患者的社交和沟通技能的改善导致了更深层次的关系和更好的家庭融合. 这些变化对整体生活质量产生了积极的影响.
科学领域:
- 临床心理学 临床心理学
- 神经发育障碍 神经发育障碍
- 社会科学 社会科学 社会科学
背景情况:
- 自闭症谱系障碍 (ASD) 显著影响社会和沟通能力.
- 在临床试验中了解自闭症患者及其家属的实践经验对于解释结果至关重要.
- 护理人员的观点 (研究合作伙伴) 提供了超越标准化措施的功能变化有价值的见解.
研究的目的:
- 从研究伙伴 (SP) 的角度探索ASD患者在临床试验期间所经历的社会化和沟通变化.
- 了解这些变化是如何表现出来的,以及它们对个人,SP和家庭的影响.
- 为临床试验结果的意义提供背景.
主要方法:
- 从两个临床试验 (aV1ation和V1aduct) 中,与ASD (没有智力障碍) 患者的SP进行定性访谈.
- 参与者 (儿童,青少年和成年人) 用口头表示了社会化和沟通领域的7分尺度上的变化.
- 试验的主要终点是Vineland-II两域复合物 (社会化和沟通) 的变化.
主要成果:
- 社会化方面的改进导致人们对他人的感受,同情心和善良的意识增加.
- 沟通的改进促进了更好的倾听和自我表达.
- 据SP报道,更富有的人际关系,更好的家庭融合,减少压力,增加乐观情绪.
结论:
- 社会化和沟通改进的协同影响创造了积极的经验和技能发展.
- 定性见解将维尼兰-II的定量发现置于背景中,突出了变化的意义.
- 观察到的变化显著影响了ASD患者及其家人的日常生活,与健康相关的生活质量和整体福祉.
关键词:
在ASD中,使用的是ASD.自闭症 自闭症 自闭症葡萄酒国家TM-II通信 通信 通信 通信 通信.面试 面试 面试 面试 面试有意义的变化是有意义的改变质量上的影响是有质量的.在社会化,社会化.更多相关视频
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