了解对参与式健康研究伙伴关系信任的演变:一项定性研究
Meghan Gilfoyle1,2, Anne MacFarlane1,2, Zoe Hughes3
1Health Research Institute (HRI), University of Limerick, Limerick, Ireland.
概括
对公众和患者参与 (PPI) 网络的信任随着网络组织,协作和反思而演变. 公平的可见性机会对于建立和保持对参与式健康研究伙伴关系的信任至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 基于社区的参与式研究
- 定性研究方法 定性研究方法
背景情况:
- 评估参与式健康研究 (PHR) 从社区参与式研究 (CBPR) 等模型中获益,但运营方面的挑战仍然存在.
- 信任是CBPR的关键组成部分,影响伙伴关系的结果,但它经常被简单地视为存在或缺席.
- 信任的动态和时间性质需要在研究伙伴关系中更深入地理解.
研究的目的:
- 探索爱尔兰国家公众和患者参与 (PPI) 网络中信任的演变.
- 确定影响大规模PPI网络信任的发展和维持的因素.
- 为增强对未来参与式健康研究合作的信任提供见解.
主要方法:
- 一项定性研究,涉及15名来自全国PPI网络的参与者进行半结构化访谈.
- 参与者回顾了之前的纵向研究中的社交网络地图,讨论信任的演变.
- 使用反射性主题分析来解释采访数据.
主要成果:
- 信任的演变与三个上下文因素有关:网络组织,协作动态和流程/结果反射.
- 伙伴关系类型影响了表现信任的机会;国家合作伙伴和现场领导者比当地合作伙伴更具知名度.
- 通过网络结构和协作形成的可见性和参与机会,对于随着时间的推移建立信任至关重要.
结论:
- 公平的机会和知名度对于建立和维持对PHR伙伴关系的信任至关重要.
- 投资于公平的关系是研究伙伴关系的长寿和成功的关键.
- 这些发现对参与式健康研究的实践者和资助者有影响.
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