在患有海湾战争疾病的退伍军人中,治疗和生活目标
Nicole Sullivan1, Hannah Schorpp1,2, Sarah Crosky3
1War Related Illness and Injury Study Center, Veterans Affairs New Jersey Health Care System, East Orange, NJ, United States of America.
PloS one
|November 30, 2023
概括
湾岸战争退伍军人患有医学上无法解释的综合征,他们希望过上充实的生活,而不仅仅是变得更健康. 了解这些患者生成的目标可以改善以人为中心的护理和沟通,以改善海湾战争疾病 (GWI).
科学领域:
- 医学社会学 医学社会学
- 心理医学 心理医学
- 退伍军人健康的医疗服务
背景情况:
- 医学上无法解释的综合征 (MUS),或持续的身体症状,是常见的和残疾.
- 目前的MUS治疗面临着患者的不满和提供者-患者的分歧.
- 了解患者生成的目标对于协作目标设定和以人为中心的护理在MUS治疗中至关重要.
研究的目的:
- 在被诊断患有医学上无法解释的综合征 (海湾战争疾病 (GWI)) 的海湾战争退伍军人中开发一种治疗类型和生活目标.
- 探索患者对GWI管理所需结果的看法.
主要方法:
- 这项研究采用了布劳恩和克拉克的主题分析方法.
- 对参与者关于治疗和生活目标的开放式反应进行了定性分析.
主要成果:
- 治疗目标以"变得更好/更健康"",改善生活质量"",改善或寻求额外治疗"或"不知道/没有任何治疗"为中心.
- 生活目标集中在"过上充实的生活"",过上快乐的生活"",过上健康的生活"",生产力/财务成功"",管理GWI"或"不知道/没有".
- 一个关键的发现是,治疗目标主要集中在改善症状上,而生活目标则强调过上充实的生活.
结论:
- 针对海湾战争疾病 (GWI) 的患者制定的目标突出显示了人们对满足生活的渴望,不仅仅是减轻症状.
- 研究结果表明,这可能有助于改善患者与医疗服务提供者之间的沟通,并为GWI量身定制治疗方法.
- 这项研究强调了将患者的愿望纳入医学上无法解释的综合征的管理的重要性.
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