原住民与研究:研究治理中的自决权
Ibrahim Garba1,2, Rogena Sterling3, Rebecca Plevel2,4
1Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States.
原住民通过自决和治理来控制他们的数据. 这项研究探讨了土著数据主权原则如何塑造美国的研究政策和立法.
科学领域:
- 社会科学 社会科学 社会科学
- 土著研究土著研究.
- 数据治理数据治理
背景情况:
- 原住民越来越多地在研究中主张自决权.
- 土著数据主权的概念是去殖民数据实践的核心.
- 土著数据治理对于支持土著决策和数据控制至关重要.
研究的目的:
- 扩大对土著数据主权的理解.
- 检查研究立法和政策如何与土著数据治理保持一致.
- 突出CARE原则在美国土著研究政策中的作用.
主要方法:
- 分析美国土著人民采用的研究立法和政策.
- 应用CARE原则用于土著数据治理.
- 检查土著研究治理和土著数据治理之间的交叉点.
主要成果:
- 原住民通过的政策和立法承认主权关系.
- 这些政策承认土著人对数据的权利和利益.
- 立法使原住民在研究治理中的参与度更大.
结论:
- 通过自我决定的研究治理来推进土著数据主权.
- 凯尔原则为公平的数据实践提供了一个框架.
- 政策和立法是实现土著数据主权的关键机制.
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