父母参与儿童息护理的重要性在香港:定性案例研究
Frances Kam Yuet Wong1, Jacqueline Mei Chi Ho2, Tsz Chui Lai2
1School of Nursing, The Hong Kong Polytechnic University, Kowloon, Hong Kong frances.wong@polyu.edu.hk.
Archives of disease in childhood
|December 2, 2023
概括
这项研究强调,需要更好地协调临终症儿童的息护理 (CLLC). 积极的家长参与对于弥合服务差距和改善对这些孩子的照顾至关重要.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 定性研究方法 定性研究方法
- 医疗保健需要评估
背景情况:
- 患有生命限制疾病 (CLLC) 的儿童有复杂的护理需求.
- 从多个角度了解这些需求对于有效的护理规划至关重要.
- 现有的护理模式可能无法完全满足CLLC及其家庭的整体要求.
研究的目的:
- 为了比较和对比儿童的感知护理需求与生命限制条件 (CLLC).
- 探索儿童,家长和医疗保健提供者对护理要求的看法.
- 确定在CLLC的护理中存在的差距和需要改进的领域.
主要方法:
- 使用半结构面试的定性案例研究方法.
- 主题和子主题的内案和跨案分析.
- 在五个区域医院招聘25个信息员组 (CLLC-家长-医疗保健提供者).
主要成果:
- 出现了三个主要主题:"与疾病生活"",信息和理解"和"护理支持和息护理".
- 医疗保健提供者的支持主要针对身体需求;父母寻求额外的信息和支持.
- 确定需要改善护理协调和协作,护士协调的息护理是有益的.
结论:
- 在积极的家长参与下,息护理对于解决CLLC护理中的服务差距至关重要.
- 这项研究强调了多学科和以家庭为中心的方法的重要性.
- 调查结果强调需要加强对CLLC的沟通和综合支持系统.
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