长期Covid患者生活中的失去和改变意义:一种定性研究
Marishelle Lieberwerth1, Alistair Niemeijer2
1University of Humanistic Studies, Utrecht, Netherlands.
概括
长期Covid (LC) 严重影响患者的生活意义,导致失去先前的理解和改变生活价值观. 患者在寻找新的意义和希望的同时,应对孤立,能力丧失和不确定性.
科学领域:
- 医学社会学 医学社会学
- 心理学 心理学 心理学
- 质量健康研究 质量健康研究
背景情况:
- 长期Covid (LC) 是一个重大的全球健康挑战,对患者的生活产生深远影响.
- LC不仅影响身体和认知健康,还影响生命意义等存在的方面.
- 了解LC患者对生活意义的主观体验对于整体护理至关重要.
研究的目的:
- 调查长期Covid患者的生活经验和不断变化的生活意义.
- 探索LC如何影响患者对自己,他们的世界和他们的价值观的理解.
- 识别与慢性疾病中寻找意义相关的挑战和应对机制.
主要方法:
- 采用构造主义立足理论方法的定性实证研究.
- 与经历长期Covid的十名患者进行了深入采访.
- 对面试数据进行主题分析,以确定意义形成的模式.
主要成果:
- 患者报告说,他们失去了他们以前的生活叙述,并改变了他们对生命意义的理解.
- 社会孤立和身体和认知能力的丧失是导致意义变化的关键因素.
- 与接受,不确定性和LC无法控制的斗争与希望和乐观共存.
- 观察到意义维度的相互联系,理解疾病需要社会联系.
结论:
- 长期的Covid显著改变了患者的生活意义,需要重新评估个人价值观和理解.
- 经验LC涉及导航复杂的情感和存在的挑战,包括隔离和损失.
- 尽管面临困难,但患者表现出性,在寻找新的意义的同时寻找希望和接受.
- 这项研究为长期Covid的心理社会和存在层面提供了关键的见解,为患者的支持和护理策略提供了信息.
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