意识障碍的常见数据元素:儿科人口工作组的建议
Varina L Boerwinkle1, Brian Appavu2, Emilio Garzon Cediel3
1Department of Neurology, University of North Carolina in Chapel Hill, Chapel Hill, NC, USA. Varina_Boerwinke@med.unc.edu.
Neurocritical care
|December 7, 2023
概括
对于儿童意识障碍 (DoC) 的标准化术语对于研究至关重要. 这项研究引入了儿科特异性的常见数据元素 (CDE),以实现协作研究,并推进对患有DoC的儿童的基于证据的护理.
科学领域:
- 儿科神经学 儿科神经学
- 神经临界护理是指神经临界护理.
- 发育神经科学的发展神经科学.
背景情况:
- 缺乏标准化的术语阻碍了儿童意识障碍 (DoC) 的比较研究.
- 测量幼儿意识具有独特的挑战,阻碍了基于证据的护理的进步.
- 临床检查和生物标志物的进步提供了评估发育中的大脑DoC的新方法.
研究的目的:
- 为意识障碍 (DoC) 建立基于共识的,为儿科量身定制的共同数据元素 (CDE).
- 为了促进可靠的测量和比较研究在儿科医疗中心.
- 支持为新生儿和患有DoC的儿童提供基于证据的护理.
主要方法:
- 在神经临床护理协会的治愈昏迷运动下召集了一个由儿科医疗中心专家组成的国际跨学科小组.
- 在关键研究领域开发了针对儿科的共同数据元素 (CDE).
- 包括行为表型,生物标本,电生理学,家庭/护理目标,神经成像,结果,生理学,疗法和儿科等工作组.
主要成果:
- 在DoC研究中为常见数据元素 (CDE) 生成了以儿科为重点的建议.
- 传播这些CDE用于涉及DoC的儿科患者的研究.
- 提供了一套基本的标准化术语,用于儿科医疗中心的研究.
结论:
- 推的CDE促进了合作和成功的儿童昏迷国际研究.
- 这些标准化元素对于促进对儿童DoC的理解和治疗至关重要.
- 支持通过共享的研究术语来改善基于证据的护理的愿景.
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