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患者参与研究规模 (PEIRS-22):丹麦语翻译,适用性和用户体验

Mille Guldager Christiansen^1,2, Helle Pappot^3,4, Clayon Hamilton⁵

¹Department of Oncology, Center for Cancer and Organ Diseases, Copenhagen University Hospital, Rigshospitalet, Denmark. mille.guldager.christiansen@regionh.dk.

Research involvement and engagement

|December 8, 2023

概括

患者参与研究量表 (PEIRS-22) 已成功翻译并为丹麦人群验证,证明了其在评估有意义的患者参与健康研究中的适用性. 这种经过验证的工具支持以患者为中心的实践和癌症研究中的合作.

科学领域:

医疗保健服务研究医疗服务研究
患者和公众参与 (PPI)
心理测量心理测量心理测量

背景情况:

患者与公众参与 (PPI) 在全球卫生研究中越来越受认可.
准确的测量工具对于评估PPI有效性至关重要.
患者参与研究规模 (PEIRS-22) 评估了患者和护理人员的参与.

研究的目的:

将PEIRS-22翻译成丹麦语,确保语言验证和文化适应.
评估丹麦PEIRS-22在患者咨询委员会中的适用性.
通过重点小组探索使用丹麦PEIRS-22的用户体验.

主要方法:

一项三阶段的研究涉及翻译,语言验证和PEIRS-22.2.的文化适应.
第二阶段使用丹麦PEIRS-22评估了适用性,其中包括来自三个癌症咨询委员会 (n=15) 的个人.
第三阶段进行了焦点小组采访,与一小部分参与者 (n=9) 进行了采访,以探索用户体验.

主要成果:

翻译的结果是丹麦PEIRS-22在概念和文化上与英语版本相当.
适用性令人满意,完成率高,平均PEIRS-22得分为85.2/100.
焦点小组确定了文化相关性,自我反思,动机,赋权和对促进有意义参与的信任等主题.

结论:

丹麦的PEIRS-22已经验证并准备好在丹麦人群中使用.
该工具可以加强以患者为中心的实践和在丹麦癌症研究中的合作.
建议将PEIRS-22与定性方法相结合,以充分理解有关有意义参与的观点.

关键词:

丹麦语丹麦语丹麦语焦点小组焦点小组焦点小组皮尔斯-22 皮尔斯-22 患者参与研究规模扩大.患者和公众参与.患者的参与度患者的参与度

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