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嵌入式儿科息瘤诊所的实践范围
Hee Su Park1, Nicholas P DeGroote2, Anna Lange2
1Emory University School of Medicine (H.S.P), Atlanta, Georgia, USA.
Journal of pain and symptom management
|December 8, 2023
概括
儿童息护理 (PPC) 对癌症儿童的访问涵盖了许多主题,包括症状管理和护理协调. 更多的领域更接近生命终点 (EOL) 和固体瘤病例.
科学领域:
- 儿科瘤学 儿科瘤学
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 儿科息护理 (PPC) 对于改善癌症儿童的终身护理至关重要.
- 在儿科瘤学设置中,PPC访问的具体内容和范围仍然不太清楚.
研究的目的:
- 调查儿童癌症患者在PPC访问期间讨论的各种主题和领域.
- 分析PPC访问的内容是如何根据患者人口统计,诊断,访问类型和接近EOL的不同而变化的.
主要方法:
- 351名儿科癌症患者 (0-27岁) 的回顾性队列研究,在学术PPC诊所 (2017-2022) 中观察到.
- 从电子健康记录,PPC诊所数据库和癌症注册表中抽取的数据.
- 根据患者特征和EOL近距离,对记录的讨论领域 (护理目标,症状管理,护理协调) 的分析.
主要成果:
- 分析了1919年的门诊PPC访问,揭示了广泛的实践范围.
- 更多的域名在EOL后90天内访问,而不是更远的域名 (中位数为12.0对10.0域名).
- 疼痛和临终关怀的合作在EOL附近更频繁;固体瘤讨论了更多的症状管理子域,特别是疼痛 (79.9%).
结论:
- 儿科瘤学PPC实践是全面的,每次访问都涉及到许多子领域.
- 主要讨论领域包括与瘤团队的护理协调以及对患者和家人的心理社会支持.
- PPC干预措施的强度和重点,特别是症状管理,更接近EOL和特定诊断,如固体瘤.
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