为种族化社区提供精确的健康公平
Arafaat A Valiani1,2, David Anderson3, Angela Gonzales4
1The Department of History and Global Health Program, University of Oregon, 1288 University of Oregon, Eugene, OR, 97403, USA. valiani@uoregon.edu.
International journal for equity in health
|December 13, 2023
概括
在人类基因组学研究中包括多样化的人口的努力正在增加. 本评论探讨了公平的包容性,并通过适应土著数据主权原则,提出了精确健康公平 (PHE).
科学领域:
- 基因组学就是基因组学.
- 精准医学是一门精准的医学.
- 健康 公平 卫生 公平
背景情况:
- 种族包容在遗传学和基因组项目中的历史背景.
- 最近试图将种族化个体纳入人类基因组学研究.
- 探索社区参与研究的公平条件.
研究的目的:
- 审查人类基因组学中历史和当前的包容性努力.
- 对种族化社区的包容性模型的公平性进行批判性分析.
- 为公平的未来研究提出一个框架.
主要方法:
- 在基因组学中种族包容的历史审查.
- 分析精准医学当前的包容性策略.
- 原住民数据主权原则的应用.
主要成果:
- 包容性努力有一个复杂的历史.
- 参与的公平条件需要进一步研究.
- 土著数据主权为数据治理提供了一个模型.
结论:
- 未来的人类基因组学和精准医学必须优先考虑公平的包容.
- 精确健康公平 (PHE) 是一个关键的目标.
- 适应土著数据主权原则可以加强数据治理和社区参与.
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