父母对有医疗复杂性的孩子的临时照顾的偏好
Yoshiko Yamamoto1, Ai Aoki1, Hiroshi Fuji2
1Department of Health Policy, National Center for Child Health and Development, Tokyo, Japan.
概括
患有医疗复杂性 (CMC) 的孩子的父母在缓解服务中优先考虑高水平的医疗护理,特别是呼吸机管理. 他们愿意每晚支付大约75,367日元,以获得最佳的护理.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 医疗支持服务 医疗支持服务
- 家庭照顾 家庭照顾
背景情况:
- 全球患有医疗复杂性 (CMC) 的儿童患病率不断增加.
- 对于CMC及其家属的短期休息护理服务的重大未满足需求.
- 立法支持存在,但对缓解护理质量的偏好需要调查.
研究的目的:
- 调查家长对短期休息护理属性的偏好.
- 为了确定父母愿意为不同级别的休息照顾付费的意愿.
- 为CMC提供改进的缓解护理服务的发展提供信息.
主要方法:
- 用于评估偏好和支付意愿的离散选择实验 (DCE).
- 调查问卷给使用过夜休息护理的儿童的父母.
- 条件逻辑模型用于DCE数据分析.
主要成果:
- 70名家长参与了调查,他们的孩子平均年龄为7.8岁.
- 96%的儿童患有严重残疾;38%的儿童需要家庭呼吸机.
- 对具有先进医疗能力的休息护理的最高偏好,包括呼吸机管理 (系数1.61).
- 父母愿意为最高水平的医疗护理支付约75,367日元/晚.
结论:
- 休息护理服务必须提供先进的医疗支持,特别是对呼吸机依赖的CMC.
- 父母的偏好突出了需要专门照顾,以确保安全和福祉.
- 这些发现为增强和扩大这些家庭的缓解护理选择提供了基础.
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