对患有血液性恶性瘤的老年人进行远程医疗严重疾病护理计划:单臂试点研究
Marissa LoCastro1, Soroush Mortaz-Hedjri2, Ying Wang3
1School of Medicine and Dentistry, University of Rochester, Rochester, NY.
Blood advances
|December 13, 2023
概括
远程医疗提供的严重疾病护理计划 (SICP) 对患有急性骨髓性白血病 (AML) 和骨髓发育综合征 (MDS) 的老年人来说是可行的和可用的. 这种方法改善了患者的理解和临床医生的协调,提高了未来的护理规划.
科学领域:
- 老年瘤学 老年瘤学
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患有急性骨髓性白血病 (AML) 和骨髓显样性综合征 (MDS) 的老年人经常在诊断时经历痛苦.
- 严重疾病对话 (SICs) 可以改善理解和未来规划,但由于患者的感知不适而经常被推迟.
- 远程医疗提供了一个潜在的解决方案,以在舒适的家庭环境中促进SIC.
研究的目的:
- 评估远程医疗为老年人诊断出AML或MDS的严重疾病护理计划 (SICP) 的可行性和可用性.
- 评估患者和护理人员对远程医疗的舒适性和接受性,以进行严重疾病对话.
- 探索远程医疗SICP对疾病理解和临床医生与患者对齐的影响.
主要方法:
- 一项单臂试点研究涉及20名患有AML或MDS的老年人.
- 通过保留率 (>80%被认为是可行的) 评估可行性.
- 用户可用性测量使用远程医疗可用性问卷 (TUQ; >5被认为可用),以及可接受性,疾病理解和定性访谈.
主要成果:
- 95%的高保留率 (19/20) 表示可行性.
- 患者和护理人员的平均TUQ分数为5.9,表明可用性良好.
- 该计划被认为是可以接受的,88.2%的人认为它是值得的,75.0%的人报告了临床医生的密切关系. 患者对可治愈性和预期寿命的理解得到了改善.
结论:
- SICP的远程医疗服务是老年AML和MDS患者的可行,可用和可接受的干预措施.
- 这种方法可以增强沟通和理解,潜在地改善这一群体的终身护理计划.
- 对基于远程医疗的息护理干预措施的进一步研究是有必要的.
相关概念视频
Bone Marrow Sampling and Transplants
333
Bone marrow transplant is a potential cure for several diseases, including cancer and specific genetic disorders. Notably, this procedure is applicable for patients suffering from aplastic anemia, certain types of leukemia, severe combined immunodeficiency disease (SCID), Hodgkin's disease, non-Hodgkin's lymphoma, multiple myeloma, thalassemia, sickle-cell disease, and certain cancers.
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
333
Treatment Resistant Cancers
3.3K
Cancer is the second leading cause of death in the United States. A cancer cell is genetically unstable and hence can mutate faster. They can also modify their microenvironment and escape immune surveillance. The difficulties in treating cancer are further compounded by the emergence of rapid resistance to anticancer drugs. The most common ways to attain resistance in cancer cells include alteration in drug transport and metabolism, modification of drug target, elevated DNA damage response, or...
3.3K
Documentation in Long-Term and Home Healthcare Setting
893
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
893


