为面向患者的技术选择患者报告的结果措施
Priyank Raj1, Youmin Cho1, Yun Jiang2
1D. Bradley McWilliams School of Biomedical Informatics, The University of Texas Health Science Center at Houston, Houston, TX 77030, United States.
JAMIA open
|December 15, 2023
概括
选择患者报告的结果措施 (PROM) 对口服治疗的乳腺癌患者至关重要. 对于专用乳腺癌应用程序,建议使用EORTC QLQ-C30 + EORTC QLQ-BR45;对于多种癌症平台,建议使用PRO-CTCAE + PROMIS 10 GH.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 口服抗癌剂越来越多地用于乳腺癌 (BCA) 治疗.
- 面向患者的技术 (PFT) 平台需要强大的方法来收集患者报告的结果措施 (PROM).
- 选择适当的PROM对于准确评估BCA患者的症状和生活质量至关重要.
研究的目的:
- 为接受口服抗癌药物治疗的BCA患者选择PROM概述一个系统的过程.
- 为选择适合整合到面向患者的技术 (PFT) 平台的PROM提供指导.
- 为了平衡患者需求与开发人员的考虑,以实现高效的PROM实施.
主要方法:
- 根据既定指南,对可用的PROM进行了彻底评估.
- 根据它们对乳腺癌患者的内容相关性来评估PROM.
- 纳入了PFT平台设计的考虑因素,包括界面可行性和用户工作量.
主要成果:
- 对于专门的乳腺癌应用,建议结合EORTC QLQ-C30和EORTC QLQ-BR45.
- 对于多种癌症的PFT平台,由于接口和工作负载的考虑,建议使用PRO-CTCAE和PROMIS 10 GH.
- 建议在全面的数据收集中添加临时项目来补充选定的PROM.
结论:
- 选择用于PFT平台的PROM需要仔细考虑特定的癌症类型和平台范围.
- 推的PROM旨在优化数据收集,同时尽量减少患者和开发人员的负担.
- 本指南帮助PFT开发人员在针对瘤患者群体的PROM选择的复杂性方面进行导航.
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