基于网络的状细胞疾病资源质量为医疗保健转型:网站内容分析 网站内容分析
Thomas Annesi1, Caren Steinway1,2, Toyosi Oluwole2
1Department of Pediatrics, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Hempstead, NY, United States.
对于转移到成人护理的状细胞疾病 (SCD) 的青少年和年轻成年人,在线健康信息的质量很差. 改进网络资源可以提高这些人的自我效能.
科学领域:
- 医疗信息学 医疗信息学
- 青少年医学 青少年医学
- 血液学 血液学 血液学
背景情况:
- 患有状细胞疾病 (SCD) 的青少年和年轻人面临着从儿科到成人医疗保健的关键过渡期.
- 这一阶段与急性医疗利用率和死亡率的增加有关.
- 面向患者的SCD过渡护理质量的Web资源仍然未经评估.
研究的目的:
- 评估SCD转型护理在线健康信息的质量和可读性.
- 将网站质量指标从2018年到2021年进行比较,以识别随时间变化的变化.
主要方法:
- 在2021年7月使用SCD过渡关键字搜索谷歌,雅虎和Bing.
- 收集并过顶部搜索结果,不包括重复和非转换相关的网站.
- 评估了67个符合条件的网站,使用HONcode,Flesch阅读方便,Flesch-Kincaid等级水平,EQIP和一个新的SCD内容检查列表 (SCDCC).
主要成果:
- 只有7.4%的收集的网站符合纳入标准,22%的网站拥有HONcode认证.
- 与未经认证的网站相比,HONcode认证的网站显示出更好的可读性 (更高的FRE,更低的FGL),但较低的临床内容 (SCDCC).
- 只有10%的网站达到7年级推的阅读水平;9%的网站根据EQIP得分被评为高质量.
结论:
- 关于SCD过渡护理的在线健康信息的整体质量很差.
- 加强基于网络的资源至关重要,为过渡年轻人提供自我管理所需的知识和技能.
- 改进可以在SCD的年轻人中在他们的医疗保健过渡期间培养更大的自我效能.
更多相关视频
05:23Continuous Manual Exchange Transfusion for Patients with Sickle Cell Disease: An Efficient Method to Avoid Iron Overload
Published on: March 14, 2017
08:23Characterization of Sickling During Controlled Automated Deoxygenation with Oxygen Gradient Ektacytometry
Published on: November 5, 2019
相关概念视频
Health Information Technology and Healthcare Information System
Health Information Technology, commonly called HIT, integrates advanced information systems and technology in healthcare settings. Its primary functions include:
Discharge Summary Forms
Here's a detailed look at the key components and guidelines for preparing a discharge summary:
Nursing Clinical Information System
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
Issues And Trends In Healthcare Delivery System
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities
Methods Of Healthcare Delivery System
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is...
