纤维肌痛患者与医疗保健途径的经验管理观点:一个定性研究
Alexandra Kachaner1, Magda Harim2, Alice Combier3
1Service de médecine interne, Université Paris Cité, Paris, France.
Frontiers in medicine
|December 18, 2023
概括
纤维肌痛患者经历了严重的痛苦和功能障碍,经常觉得医疗保健提供者没有听到. 改善医生患者关系和采取以患者为中心的方法对于更好的纤维肌痛管理至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 纤维肌痛影响1-2%的人口,导致严重的残疾和管理挑战.
- 这种情况通常被认为是良性的,但却导致了长期的重大后果.
研究的目的:
- 探索纤维肌痛的新型管理策略.
- 在纤维肌痛护理中对医生患者关系进行定性分析.
主要方法:
- 通过电话采访对19名成年纤维肌痛患者进行了采访.
- 解释性现象学分析被用来分析患者的叙述,重点是个人的主观性.
主要成果:
- 患者报告了严重的痛苦,功能障碍和失去控制.
- 不平衡的医生-病人关系,不相信的恐惧,对他们的状况的矛盾是常见的.
- 医疗保健系统在培训,提供者响应和心理方面的污名化方面存在缺陷.
结论:
- 纤维肌痛应该被视为一种具有长期影响的严重疾病.
- 当前的护理途径往往不合适,导致潜在的阳性后果.
- 建议加强以患者为中心的管理,专注于沟通和认可.
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