被诊断患有状细胞疾病的儿童的社会适应:一项回顾性研究
Hailey M Zwicker1,2, Taryn B Fay-McClymont2,3,4, Sharon H J Hou5,6
1Hematology, Oncology, Transplant Program, Alberta Children's Hospital, Calgary, Alberta, Canada.
Pediatric blood & cancer
|December 19, 2023
概括
状细胞疾病 (SCD) 儿童的社会适应与家庭功能和执行功能有关. 像加拿大的年龄和男性性别这样的社会文化因素也会影响儿科SCD患者的调整.
科学领域:
- 儿科神经心理学 儿科神经心理学
- 儿童心理学 儿童心理学
- 血液学 血液学 血液学
背景情况:
- 患有状细胞疾病 (SCD) 的儿童面临着重大的身体,心理和社会挑战.
- 了解社会调整对于改善儿科SCD患者的生活质量至关重要.
研究的目的:
- 调查SCD儿童的社会适应.
- 确定与社会调整相关的因素.
主要方法:
- 在第三级护理儿科医院从32名患有SCD的儿童回顾性数据收集.
- 使用儿童行为评估系统 (BASC-3) 和儿科生活质量库存 (PedsQL) 评估社会适应.
- 评估执行功能 (BRIEF-2) 和与疾病无关的因素,包括家庭功能和在加拿大居住的时间.
主要成果:
- 16%的患者报告说,他们遇到了社会适应困难.
- 更好的家庭功能和更高的执行功能与父母报告的更好的社会调整 (PedsQL) 相关联.
- 男性性别和在加拿大居住时间较长与自我报告的社会调整 (PedsQL) 较高有关.
结论:
- 患有SCD的儿童的社会适应受执行功能和家庭动态的影响.
- 社会文化因素,如在加拿大居住的时间,在社会调整中发挥作用.
- 需要进一步的研究来充分了解这些影响,并制定有针对性的干预措施.
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