婴儿残疾对母亲对压力感知的影响
Lynn Singer1, Kathleen J Farkas2
1Case Western Reserve University School of Medicine, and Co-Director, Medical-Behavioral Center, Rainbow Babies & Childrens Hospital, 2101 Adelbert Road, Cleveland, OH 44106.
Family relations
|December 19, 2023
概括
照顾患有长期气管切除术的儿童的母亲经历了相当大的压力,特别是经济压力. 然而,他们还报告说,在管理孩子的照顾方面,他们有很强的掌握感,具体因素影响了压力水平.
科学领域:
- 儿科护理 儿科护理
- 家庭研究 家庭研究
- 康复医学 康复医学 康复医学
背景情况:
- 婴儿残疾严重影响家庭动态和母亲的福祉.
- 儿童的长期气管切除术给母亲带来了独特的护理挑战.
- 了解母亲的压力对于制定有效的支持干预措施至关重要.
研究的目的:
- 描述母亲对婴儿残疾对家庭生活的影响的看法.
- 根据孩子的医疗,社会和人口因素,检查生活各个领域的压力强度.
- 确定影响母亲在照顾长期气管切除术儿童时的压力因素.
主要方法:
- 使用修改后的家庭影响量表 (Impact-on-Family Scale) 对27名婴儿母亲和长期气管切除的儿童进行了评估.
- 评估母亲对不同生活领域压力强度的看法.
- 与孩子的医疗,社会和人口特征相关的压力水平.
主要成果:
- 母亲报告说,总体压力很高,财务状况是他们主要关注的问题.
- 据报道,在学习管理孩子的照顾方面,有强烈的掌握感.
- 确定了与增加母亲压力相关的特定医疗和人口因素.
结论:
- 照顾长期气管切除的孩子给母亲带来了巨大的压力,尤其是经济上的压力.
- 尽管面临重大挑战,母亲的掌握和应对机制是显而易见的.
- 进一步的研究应探讨基于确定影响因素的有针对性的支持.
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