使用经验采样方法来捕捉自闭症成年人的披露机会
Abigail M A Love1, Chris Edwards1,2, Ru Ying Cai1,3
1Autism Spectrum Australia, Aspect Research for Autism Practice, Chatswood, New South Wales, Australia.
Autism in adulthood : challenges and management
|December 20, 2023
概括
自闭症成人自闭症成年人
科学领域:
- 神经发育条件 神经发育条件
- 自闭症披露 自闭症披露
- 社会互动 社交互动
背景情况:
- 自闭症个体的披露经验产生了混合的发现,自闭症与非自闭症观点报告的结果不同.
- 之前的披露研究缺乏生态有效的方法,可能引入记忆偏差并降低现实世界的代表性.
研究的目的:
- 为了捕捉自闭症成年人披露机会的现实世界结果.
- 利用生态有效的方法,以便对披露经验有更具代表性的理解.
主要方法:
- 使用经验采样方法与36名自闭症成年人2个月.
- 在整个研究过程中,从概念到传播,纳入共同生产原则.
- 收集了231个披露机会的数据,分析了披露或不披露自闭症的决定.
主要成果:
- 三分之二的记录机会 (n=153) 涉及自闭症成年人披露他们的诊断.
- 定性主题分析揭示了五个主题,涉及思维过程,反应和对披露的反思.
- 调查结果强调了披露决定的复杂性,受内部和外部因素的影响.
结论:
- 披露决定及其结果是多方面的,受到个人和环境影响的影响.
- 加强对自闭症成年人的支持,增加非自闭症个体之间的理解,可以减轻负面披露经历.
- 改善披露过程对于自闭症成年人的日常心理健康至关重要.
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