数据上的差距:在儿童福利系统中定义,识别和跟踪患有医疗复杂性的儿童
Joyce Chung1, Peter J Pecora2, Aakanksha Sinha3
1Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States of America.
Child abuse & neglect
|December 20, 2023
概括
许多美国儿童福利机构都在努力定义和识别医疗复杂儿童 (CMC). 标准化定义对于改善对这些弱势儿童的照顾和收集人口层面的基本数据至关重要.
科学领域:
- 儿童福利研究 儿童福利研究
- 儿科卫生保健政策 儿科卫生保健政策
- 公共卫生数据系统
背景情况:
- 在美国近40万个寄养儿童中,大约10%的儿童在医学上是复杂的.
- 在儿童福利系统中,医疗复杂儿童 (CMC) 的人口级数据基本上无法获得.
- 了解儿童福利系统如何为这些儿童提供服务,对于服务提供至关重要.
研究的目的:
- 调查美国儿童福利机构如何定义,识别和跟踪医疗复杂儿童 (CMC).
- 评估目前儿童福利机构对CMC的数据收集和识别实践.
- 识别儿童福利人口中跟踪CMC的障碍.
主要方法:
- 在美国各地的儿童福利机构进行了一项调查.
- 分析了关于CMC的定义,识别和跟踪的答案.
- 使用了描述性统计分析和定性主题分析.
主要成果:
- 分析了来自28个州和2个主要城市的调查.
- 近一半的机构缺乏对CMC的明确定义,现有的定义往往没有标准化.
- 大多数机构都无法轻松识别CMC或访问相关数据,并将定义的模糊性作为障碍.
结论:
- 美国儿童福利机构经常缺乏明确的定义和方法来识别和跟踪医疗复杂儿童 (CMC).
- 这种缺陷阻碍了将护理和服务量身定制为CMC的特定需求的能力.
- 建议在儿童福利数据系统中制定和实施CMC的标准化定义,以改进数据收集和告知政策.
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