患有多动症儿童的父母对遗传检测的态度:来自土耳其样本的数据
Utku Beyazit1, Hande Şirin2, Mehmet Erdem Uzun2
1Child Development Department, Kumluca Health Sciences Faculty, Akdeniz University, Antalya, Turkey.
Journal of genetic counseling
|December 21, 2023
概括
患有注意力缺陷/多动障碍 (ADHD) 的孩子的父母对基因测试有不同的看法,受孩子和父母因素的影响. 许多家长对遗传检测的影响意识较低,并且对遗传检测的影响感到担忧.
科学领域:
- 遗传学 遗传学 是一个
- 儿科 儿科 儿科
- 心理学 心理学 心理学
背景情况:
- 注意缺陷/多动障碍 (ADHD) 是儿童常见的神经发育障碍之一.
- 基因检测正在越来越多地探索复杂的疾病,如ADHD,为父母提出道德和实际的问题.
- 了解父母的观点对于在儿科护理中负责任地实施基因测试至关重要.
研究的目的:
- 调查被诊断患有多动症儿童的家长关于基因检测的意见.
- 确定影响家长对ADHD遗传测试有用性和影响的观点的因素.
- 评估家长对ADHD背景下的遗传检测的认识和担忧.
主要方法:
- 采用混合方法方法,收集了来自土耳其540名家长的数据.
- 数据收集使用了面对面和在线 (通过谷歌表单) 管理的问卷.
- 统计分析检查了家长的意见和人口统计/临床变量之间的关系.
主要成果:
- 父母对ADHD遗传检测的意见因孩子的性别和年龄,父母的教育,收入以及怀孕期间的先前遗传检测而有很大差异.
- 一个普遍的发现是父母对遗传测试的知识和意识水平较低.
- 考虑进行基因测试的家长表示担心DNA存储,潜在的家庭冲突和宗教兼容性.
结论:
- 父母对ADHD遗传检测的看法是多方面的,并受到各种人口和个人因素的影响.
- 显然需要提高家长的教育和对ADHD遗传检测的认识.
- 解决与隐私,家庭动态和伦理/宗教考虑有关的家长担忧对于未来的基因测试计划至关重要.
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