患有脑的年轻人与他们的同龄人之间的参与差异:一个横截面的多中心欧洲研究
Audrey Guyard1, Jérôme Fauconnier1, Holger Muehlan2
1UMR 5525 CNRS / TIMC-IMAG Team MESP, Grenoble Alpes University, Pavillon Taillefer CHU Grenoble CS10217, F-38043, Grenoble, Cedex 9, France.
Disability and health journal
|December 21, 2023
概括
与同龄人相比,患有脑 (CP) 的年轻人在生活领域的参与率显著降低. 继续教育可能有助于减少人际关系和独立方面的差异.
科学领域:
- 关于残疾人的研究.
- 康复科学 康复科学 康复科学
- 公共卫生 公共卫生
背景情况:
- 与非残疾同龄人相比,残疾儿童和青少年的参与度往往降低.
- 脑 (CP) 是一种可以影响生活各个领域参与的疾病.
研究的目的:
- 量化CP的年轻人与他们的非残疾同龄人之间的参与差异.
- 调查财务困难和学生身份对参与差异的调解效应.
- 检查个人因素和损伤严重程度对这些差异的适度影响.
主要方法:
- 一项涉及228名患有CP的年轻人和2861名法国,德国和瑞典的非残疾同龄人 (19-28岁) 的横截面研究.
- 参与度是使用适用于年轻成年人 (QYPP-YA) 的年轻人参与度问卷来衡量的.
- 结构方程建模 (WLSMV) 带有偏差校正的启动信任区间被用于分析五个领域的参与差异.
主要成果:
- 患有CP的年轻人在所有测量领域的参与率都较低,最显著的是在亲密关系中.
- 学生身份调解了亲密关系,人际关系和独立性的参与差异.
- 性别和损伤严重程度影响了参与差异;较轻的损伤与某些领域的参与度更大相关.
结论:
- 与非CP同行相比,患有CP的年轻人面临不平等的参与机会.
- 持续教育可以作为一种策略,以减轻CP患者在人际关系和独立性方面的参与差距.
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