芬兰青少年患有青少年异常性关节炎的过渡准备情况
Katriina Mikola1, Katariina Rebane2, Hannu Kautiainen3,4
1New Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Stenbackinkatu 9, 00290, Helsinki, Finland. Katriina.Mikola@hus.fi.
Pediatric rheumatology online journal
|December 22, 2023
概括
一个经过验证的调查问卷有助于识别患有青少年异常性关节炎 (JIA) 的青少年,他们需要获得成功过渡到成人护理的支持. 成功的转变改善了疾病的结果,而不成功的转变会对健康产生负面影响.
科学领域:
- 类风湿病学 类风湿病学
- 儿科内分泌学 儿科内分泌学
- 青少年医学 青少年医学
背景情况:
- 青少年异常性关节炎 (JIA) 是儿童常见的一种慢性风湿性疾病.
- 从儿科诊所转移到成人诊所的护理需要自我管理技能.
- 评估过渡准备对于长期患者的结果至关重要.
研究的目的:
- 评估芬兰JIA患者的过渡准备程度.
- 确定支持成功过渡的实际工具.
- 检查不成功过渡对疾病活动的影响.
主要方法:
- 对83名JIA患者进行了问卷调查.
- 过渡成功在第一个成人诊所访问时进行了评估.
- 疾病活动 (DAS28) 被评估与过渡成功相关.
主要成果:
- 该研究发现,问卷截止分数为24分或以上表明过渡成功.
- 据估计,在71%的患者中,过渡成功.
- 成功过渡与更好的疾病活性相关 (下DAS28).
结论:
- 问卷是评估JIA中的过渡准备情况的有用工具.
- 识别需要更多支持的患者可以增强自我管理和过渡.
- 不成功的过渡会对JIA患者的疾病结果产生负面影响.
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