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关于NESHIE观测研究的数据管理计划.

Adéle Strydom1, Jeanne Van Rensburg1, Michael S Pepper1

  • 1Institute for Cellular and Molecular Medicine, Department of Immunology, and SAMRC Extramural Unit for Stem Cell Research and Therapy, Faculty of Health Sciences, University of Pretoria, Pretoria, South Africa.

Frontiers in genetics
|December 22, 2023
PubMed
概括

数据管理计划对于伦理研究至关重要,特别是对弱势群体的研究. 本研究为低收入和中等收入国家 (LMICs) 管理多主题数据提供了一个模板.

科学领域:

  • 数据科学数据科学数据科学
  • 生物信息学是一种生物信息学.
  • 公共卫生研究 公共卫生研究

背景情况:

  • 有效的数据管理对于伦理研究至关重要,特别是在参与者数据隐私和样本共享方面.
  • 现有的数据管理计划往往缺乏涉及弱势群体和复杂数据类型 (如多主题) 的研究的具体性.

研究的目的:

  • 提出一个完整的数据管理计划模板,适用于涉及低收入和中等收入国家 (LMICs) 弱势群体的研究.
  • 提供可修改的概要,用于管理各种数据,包括从样本中获取的临床和多学科数据,在敏感的研究环境中.

主要方法:

  • 以"NESHIE研究"为基础,利用详细的数据管理计划.
  • 开发一个模板,解决数据治理,参与者保护,研究数据和样本的生命周期.

主要成果:

  • 一个可下载,可修改的数据管理计划模板,旨在与弱势群体进行研究.
  • 该模板涵盖了临床和多学科数据的治理,收集,组织,使用,存储,保存,共享和访问.

结论:

  • 开发的模板提供了一个强大的框架来管理复杂的研究数据,特别是在LMICs.
  • 本资源旨在促进在临床研究和涉及弱势群体和多学科方法的临床试验中进行道德和高效的数据处理.
关键词:
尼希 (NESHIE) 是一个数据数据的数据数据的数据.在法律上,立法就是立法.管理的管理管理的管理.一个样本样本样本的样本样本.

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