痴呆症患者的护理伙伴的个性化协调和赋权 (ICECaP):研究理由和协议
Virginia T Gallagher1, Shannon E Reilly1, George Worthington2
1Department of Neurology, School of Medicine, University of Virginia, PO Box 801018, Charlottesville, Virginia 22908, USA.
Contemporary clinical trials
|December 22, 2023
概括
本研究介绍了ICECaP,这是一项针对痴呆症护理合作伙伴 (CPs) 的干预措施,以改善他们的健康和福祉. 试点试验测试个人化支持是否减少了CP负担并提高了生活质量.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 心理学 心理学 心理学
背景情况:
- 超过1000万患有痴呆症的老年人 (PWD) 在美国依赖1100万无偿护理伙伴 (CP).
- 护理伙伴面临不良身体,心理和认知健康结果的风险增加.
- 现有的支持系统往往无法满足CP的复杂需求.
研究的目的:
- 介绍一个试点随机对照试验的理由,设计和协议.
- 为了测试个性化协调和授权护理合作伙伴 (ICECaP) 干预措施的有效性.
- 评估受过培训的痴呆症护理协调员对CP福利和护理导航的影响.
主要方法:
- 一项试点随机对照试验,将ICECaP与常规护理进行比较.
- ICECaP的干预包括一名经过培训的护理协调员,每月提供混合支持 (面对面,电话,电子邮件,视频).
- 在基线和12个月测量的结果包括CP抑郁症,负担,焦虑,生活质量和对痴呆症行为症状的反应.
主要成果:
- 研究方案旨在评估干预措施的有效性.
- 将评估有效性机制,包括CP痴呆知识,准备,自我有效性和乐观性的变化.
- 该试验还将检查对PWD支持服务利用的影响.
结论:
- 这项试点试验协议为支持痴呆症护理合作伙伴提供了一个框架.
- 发表干预方案可以帮助其他痴呆症护理团队.
- ICECaP的干预有潜力改善CP的健康和福祉.
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