基于患者偏好和专家意见的炎症性肠病自我管理的教育书籍的开发和验证:一项方法学研究
Narges Norouzkhani1, Ali Bahari2, Mahbobeh Faramarzi3
1Department of Medical Informatics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad 13944-91388, Iran.
Journal of clinical medicine
|December 23, 2023
概括
为炎症性肠病 (IBD) 自主管理开发和验证了教育材料. 这种以患者为中心的内容旨在改善IBD患者的应对策略.
科学领域:
- 胃肠病学 胃肠病学
- 患者教育 患者教育
- 慢性疾病管理 慢性疾病管理
背景情况:
- 对炎症性肠病 (IBD) 的自我管理教育资源很少.
- 需要根据患者偏好和专家见解量身定制的基于证据的教育材料.
研究的目的:
- 描述IBD自我管理的教育材料的开发和评估.
- 确保材料符合患者的需求和专家建议.
主要方法:
- 一个五步的过程,涉及信息需求的识别,通过文献审查的内容开发,以及专家/患者验证.
- 面部和内容的有效性被一个多学科专家小组评估.
- 目标受众验证涉及30名IBD患者的反.
主要成果:
- 召开了由10名医疗保健专业人员 (胃肠道学家,营养学家,心理学家,妇科医生,护士) 组成的专家小组.
- 该教材获得了专家的79.5%的适用性评分.
- 80% (24名30名IBD患者中) 对最终的教育材料表示满意.
结论:
- 开发的自我管理教育材料具有经过验证的面貌和内容有效性.
- 这种资源使患者和护理人员能够更好地管理炎症性肠病.
- 该研究强调了成功的协作方法,以创建以患者为中心的IBD教育工具.
相关概念视频
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Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
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