导航过渡到成年:自闭症个体的护理人员的见解
Samara M Wolpe1, Amanda R Johnson2, Sunny Kim3
1Department of Education, University of California, Moore Hall, 457 Portola Plaza, Los Angeles, CA, 90095, USA. samarawolpe@g.ucla.edu.
Journal of autism and developmental disorders
|December 23, 2023
概括
自闭症年轻人的照顾者在孩子过渡到成年时面临着导航服务和机会的挑战. 这项研究强调了他们改善自闭症患者及其家属支持系统的经验.
科学领域:
- 发展心理学 发展心理学
- 自闭症谱系障碍研究研究
- 医疗保健和社会服务 导航 导航
背景情况:
- 患有自闭症谱系障碍 (ASD) 的青少年从教育支持过渡到复杂的健康和社会服务系统.
- 在这个过渡时期,对于自闭症患者及其家人来说,有必要改善研究和支持服务.
- 了解护理人员的经验对于制定有效的过渡战略至关重要.
研究的目的:
- 探索自闭症年轻人的照顾者在孩子过渡到成年期间的经历.
- 确定在导航毕业后服务和机遇方面的挑战和成功策略.
- 为利益相关者提供现实的步骤,以缓解自闭症患者的过渡过程.
主要方法:
- 对自闭症年轻人 (18岁以上) 的照顾者进行了10次半结构面试.
- 专注于访谈护理人员的经验,支持他们的孩子通过过渡到成年.
- 采用代和归纳编码来识别反复出现的主题和子主题.
主要成果:
- 出现了三个主要主题:导航服务接收,探索可用的机会,以及父母在过渡中的作用.
- 护理人员报告说,他们对禁止的服务接入和财务负担感到非常丧.
- 找到符合自闭症个体需求,愿望和才能的合适机会是关键问题.
结论:
- 护理人员的经验揭示了自闭症成年人服务可访问性和支持方面的关键差距.
- 利益相关者可以从这些实践经验中吸取教训,以减少过渡期间的混乱和丧.
- 改善过渡支持需要解决服务导航,财务负担和个性化机会开发.
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