[对分享健康数据的知识和态度:人口调查结果]
Sonja Haug1, Rainer Schnell2, Georgios Raptis3
1Ostbayerische Technische Hochschule (OTH) Regensburg, Institut für Sozialforschung und Technikfolgenabschätzung, Regensburg, Deutschland.
Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen
|December 23, 2023
概括
德国成年人表示愿意分享健康数据进行研究,但电子健康记录的采用率很低. 对机构的信任是共享数据和参与研究的关键.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生政策 公共卫生政策
- 数字健康数字健康
背景情况:
- 医疗保健的数字化在数据通信,可用性和使用方面带来了挑战.
- 了解公众的看法对于实施数字健康倡议至关重要.
研究的目的:
- 评估德国公众对健康数据管理的了解,接受和意愿.
- 探索对电子健康记录,数据传输和研究数据使用的态度.
主要方法:
- 计算机辅助电话调查德国1308名成年人 (2022年6月).
- 双随机抽样,以确保代表性数据收集.
主要成果:
- 医疗登记册的接受度很高,但对现有登记册和医生访问的高估.
- 熟悉度低,愿意使用电子健康记录 (EHR).
- 强烈偏好选择同意数据传输;高意愿分享EHR数据用于研究 (80%+).
结论:
- 在德国,有很大的意愿分享健康数据用于研究,这取决于信任.
- 低采用EHR和偏好选择与其他地方使用的选择退出策略相反.
- 公众对研究和政府机构的信任是成功利用健康数据的关键因素.
关键词:
护理管理 护理管理在卫生部门的沟通.电子健康记录电子健康记录电子病人的病历.研究数据的研究数据.卫生登记册 卫生登记册卫生登记册 卫生登记册 卫生登记册在医疗保健领域的沟通研究数据 研究数据 研究数据远程通信基础设施的基础设施.在电信基础设施中.远程医疗远程医疗远程医疗 远程医疗 远程医疗供应管理 供应管理更多相关视频
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