综合产妇护理的观察数据:荷兰对父母和孩子的数据基础设施的经验
Zoë T M Scheefhals1,2, Eline F de Vries3, Joyce M Molenaar1,2
1Department of National Health and Healthcare, National Institute for Public Health and the Environment (RIVM), The Netherlands.
International journal of integrated care
|December 25, 2023
概括
观察数据,比如来自DIAPER (Data-Infrastructure for ParEnts and childRen) 的数据基础架构,为综合产妇护理研究提供了宝贵的见解. 解决数据质量和隐私挑战是最大限度地发挥其潜力的关键.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 孕产妇健康 孕产妇健康
- 在医疗保健中的数据科学.
背景情况:
- 观察数据,包括例行收集的数据,对于综合护理研究来说越来越重要.
- 准实验方法提高了观察数据在医疗保健研究中的实用性.
研究的目的:
- 描述使用观测数据用于综合产妇护理研究的潜力和挑战.
- 将 ParEnts 和 childRen (DIAPER) 的数据基础架构作为一个案例研究.
主要方法:
- 描述DIAPER:一个连接的,个人级别的数据基础设施.
- 使用的孕产妇护理索赔,质量/利用数据,以及从怀孕前到成年期的市政登记.
主要成果:
- 通过 DIAPER,可以评估支付模式,政策议程,护理价值,提供者变化和产妇护理干预措施.
- 确定的挑战包括缺少的数据 (自我报告的结果),数据质量,隐私和链接偏见.
结论:
- 观察数据,以DIAPER为例,为综合护理研究提供了附加值.
- 持续探索观测数据和社区讨论对于推进研究至关重要.
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