我们应该在童年时期纠正低? 决定后悔和生活质量评估 (DRAQULA) 研究
Johannes Wirmer1, Mohamed Fawzy1, Michael Sennert1
1Hypospadias Center, Pediatric Surgery Department, Sana Klinikum, Offenbach, Germany.
Journal of pediatric urology
|December 25, 2023
概括
大多数患者对儿童低度手术感到满意,报告高满意度和生活质量. 患者和家长对决定感到遗憾的程度很低,支持早期手术干预.
科学领域:
- 儿科泌尿外科 儿科泌尿外科
- 手术结果研究研究.
- 患者报告的结果
背景情况:
- 童年期的低血压修复是常见的,但长期的患者满意度和决策后悔并没有得到很好的确立.
- 评估与健康相关的生活质量 (HRQOL) 对于评估手术结果至关重要.
研究的目的:
- 为了评估患者的满意度,决策后悔,和 HRQOL 在童年 hypospadias 手术后.
- 评估家长对孩子的下修复感到遗憾的决定.
主要方法:
- 在234名 (15岁以上) 患者及其父母中进行了一项调查,这些患者在童年时经历了下手术.
- 使用了经过验证的仪器,包括决定遗憾量表和Kidscreen10指数.
- 患者的满意度是以1-5的比例衡量;使用O'Connor尺度评估决策后悔.
主要成果:
- 81名患者 (34.6%) 完成了调查,报告高满意度 (平均4.7/5) 和低决策后悔 (79.0%没有后悔).
- 父母还表示,他们对决定感到遗憾的程度很低 (81.7%没有遗憾).
- 患者的HRQOL分数与一般人群的HRQOL分数相当.
结论:
- 儿童低血压手术导致高患者满意度和可接受的HRQOL.
- 患者和家长对决策感到遗憾的低水平支持目前早期手术纠正的现行做法.
- 在这个群体中,可能需要进一步验证决策遗憾量表.
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