严重喘患者报告的结果措施:专家共识
Eva Martínez-Moragón1, Ignacio Antepara Ercoreca2, María Muñoz García3
1Servicio de Neumología, Hospital Universitario Doctor Peset, Valencia, Spain.
概括
这项研究建立了关于患者报告的关键结果和严重喘随访措施的共识. 建议包括针对以患者为中心的护理的特定工具和频率.
科学领域:
- 肺病学和呼吸系统医学
- 患者报告的研究结果研究结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 严重的喘管理需要有效的患者随访.
- 标准化患者报告的结果 (PROs) 和措施 (PROMs) 对于一致的护理至关重要.
- 当前的后续协议可能缺乏关于最佳PRO评估的共识.
研究的目的:
- 为了实现专家和患者在最相关的PROs严重喘的共识.
- 确定适合和可行的PROM用于例行后续.
- 为了确定选定的PROM的最佳测量频率.
主要方法:
- 一个两轮的德尔菲过程,涉及肺病学家,过敏学家,药剂师,护士和患者.
- 基于系统文献审查,患者焦点小组和专家名义小组的问卷开发.
- 共识定义为≥75%的协议 PRO相关性,和PROM适当性 (A) 和可行性 (F) 使用利克尔特等级.
主要成果:
- 在所有评估的PRO的相关性方面达成了共识.
- 特定的PROM如ACT,mini AQLQ,mMRC,TAI,MMAS和发行注册表被认为是适当和可行的.
- 建议的评估频率包括 ACT,TAI,mMRC 和发行登记册的季度一次;mini-AQLQ 和 MMAS 的半年一次;EQ-5D 的每年一次.
结论:
- 这种共识为以患者为中心的重症喘护理提供了一个框架.
- 经过验证的PRO的常规评估可以增强患者管理策略.
- 实施这些建议可以提高严重喘随访的质量.
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