在澳大利亚布拉格质子疗法和研究中心成立了一个消费者咨询小组
Melanie Penfold1, Peter Gorayski1,2,3, Julia Green1
1Australian Bragg Centre for Proton Therapy and Research, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.
Journal of medical radiation sciences
|December 26, 2023
概括
澳大利亚 澳大利亚 澳大利亚
科学领域:
- 在瘤学瘤学.
- 辐射疗法 辐射疗法
- 患者倡导 患者倡导
背景情况:
- 澳大利亚布拉格质子疗法和研究中心 (ABCPTR) 是澳大利亚第一个国家质子疗法中心.
- 质子束疗法 (PBT) 为固体瘤提供了先进的治疗方法,有可能减少副作用.
- 澳大利亚人目前的获取涉及具有挑战性的海外治疗.
研究的目的:
- 突出消费者参与癌症护理的关键作用.
- 为了证明澳大利亚第一个质子疗法中心的消费者咨询小组的建立.
- 在开发新的癌症治疗服务方面,确保以患者为中心的护理.
主要方法:
- 使用现有临床工作人员建立了消费者参与团队.
- 根据既定的承诺阶段制定了参与框架.
- 通过表达兴趣,为布拉格消费者咨询小组 (BCAG) 招募了10名不同的成员.
主要成果:
- 在9-12个月内成功创建了一个社区参与框架和高技能员工.
- 成立了BCAG,由消费者领导的主席和联合主席角色.
- BCAG积极影响决策过程和关键绩效指标.
结论:
- 整合患者和社区观点对于以患者为中心的临床倡议至关重要.
- 建立BCAG意味着积极主动地采取包容性癌症护理的方法.
- 这种模型增强了接受PBT的患者癌症旅程的实用性.
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