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佛蒙特州认证的专业助产士对遗传咨询师和遗传检测的看法和态度:修改后的理论研究
Jazmine L Gabriel1, Paul Burcher2,3,4, Melissa Cheyney5
1Department of Population Health Sciences, Geisinger College of Health Sciences, Danville, PA, USA.
Qualitative health research
|December 27, 2023
概括
认证的专业助产士 (CPM) 面临的挑战是为家庭分娩的客户获得遗传咨询和测试. 改善准入对于在产前护理中做出明智决策至关重要.
科学领域:
- 遗传学和基因组学 遗传学和基因组学
- 孕产妇健康 孕产妇健康
- 助产士的护理 助产士的护理
背景情况:
- 在美国,孕妇越来越多地选择家庭分娩,通常由认证的专业助产士 (CPM) 参与.
- 助产护理可以减少医疗干预并提高母亲的满意度,但整合挑战限制了标准产前检测的准入.
- 基因检测是产前查的常规部分,但研究尚未集中在CPM与这些服务的经验上.
研究的目的:
- 调查认证专业助产士 (CPM) 对遗传咨询师和遗传咨询服务的访问和观点.
- 了解与基因测试相关的障碍和促进者,在计划的家庭分娩的背景下,由CPM参加.
主要方法:
- 与认证的专业助产士 (CPM) 进行了半结构化采访.
- 修改了基于理论的方法被用于对采访数据的叙事分析.
- 该研究的重点是了解系统级,实践级和客户级的主题.
主要成果:
- 识别了系统级的问题,在获取有关遗传咨询和测试的信息.
- 观察到信息传递的实践层面模式和助产士对知识差距的认识.
- 突出了客户层面的担忧,即基因测试的价值与获取困难和信息诱导的压力相比.
结论:
- 调查结果揭示了将遗传服务纳入CPM参与的家庭分娩护理中的重大障碍.
- 结果强调了需要改进的系统和资源,以支持CPM及其客户在基因测试方面.
- 这项研究为开发决策辅助工具提供了基础,以加强计划在家分娩的遗传咨询和测试访问.
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