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评估儿童发病多发性硬化症研究参与的需求和看法:一项多方利益相关者调查

Claudia Gambrah-Lyles1, Varun Kannan2, Tim Lotze2

  • 1Division of Neurology, Department of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.

Pediatric neurology
|December 28, 2023
PubMed
概括

患者驱动的研究网络 (PPRNs) 可以让儿科多发性硬化症 (MS) 患者及其家属参与研究. 尽管有些犹,但大多数儿科多发性硬化患者和护理人员对参与感兴趣,这突出了PPRN对未来研究的潜力.

关键词:
多发性硬化症是多发性硬化症.患者的参与度 患者的参与度患者的观点患者的观点.儿科多发性硬化症儿童多发性硬化症调查 调查 调查 调查

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