测试一个文化定制的提前护理规划干预 (我的方式) 美国印第安人部落:准实验等候名单控制设计的协议
Elizabeth Anderson1, R Turner Goins2, Emily A Haozous3
1Pacific Institute for Research and Evaluation, Chapel Hill, NC, United States.
JMIR research protocols
|December 29, 2023
概括
对美国印第安人和阿拉斯加土著社区来说,文化定制的预先护理计划 (ACP) 是可行的,表明愿意参与终身护理讨论. 这项研究协议评估了干预措施.
科学领域:
- 公共卫生 公共卫生
- 健康差异 在健康上的差异
- 土著健康土著健康
背景情况:
- 美国印第安人和阿拉斯加土著 (AI/AN) 人民在终身护理方面面临着显著的差异.
- 预先护理计划 (ACP) 的低率有助于AI/AN社区的生命终结结果不佳.
研究的目的:
- 为美国印第安人部落社区定制文化,并评估基于证据的ACP计划的可行性和有效性.
- 评估参与者招募,项目评价 (可接受性,适当性,理解度,满意度) 和干预忠实度.
- 通过准实验性的等候名单控制设计,确定干预对ACP障碍,促进者,自我有效性,准备和完成的影响.
主要方法:
- 在文化上调整了现有的非洲国家和地区计划.
- 使用一个准实验性的等候名单控制设计,与两个队伍.
- 通过招聘指标,参与者调查 (满意度,接受度,适当性,理解度) 和忠实度评估 (直接观察,我的方式清单) 来衡量可行性.
- 通过测量ACP障碍,促进因素,自我有效性,准备和完成的变化来评估有效性.
主要成果:
- 成功招募了155名参与者,而目标是70人,这表明社区参与度很强.
- 113名参与者完成了干预,分析尚未完成.
- 预期高参与者满意度和成功实施与忠诚度.
- 预期的结果包括减少了ACP障碍,增加了促进者,自我有效性,准备和完成.
结论:
- 高登记人数表明,社区有很大的意愿参与事先的护理规划.
- 通过等候名单研究设计提供的文化定制的ACP计划对美国印第安人部落社区来说是可行的.
- 本研究协议为未来的干预提供了一个框架,旨在改善土著人口的终身护理.
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