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在长期幸存的外科死性肠球炎的长期幸存者的生活质量
Venus Tsz Ling Kum1, Patrick Ho Yu Chung1, Kenneth Kak Yuen Wong1
1Division of Paediatric Surgery, Department of Surgery, School of Clinical Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, HKSAR.
Journal of pediatric surgery
|December 29, 2023
概括
手术性死性肠球炎 (NEC) 的长期幸存者通常具有良好的生活质量 (QoL),与普通人群相美. 然而,应注意他们的心理社会福祉,因为它可能较低.
科学领域:
- 儿科手术 儿科手术
- 胃肠病学 胃肠病学
- 生活质量研究 研究 生命质量研究
背景情况:
- 结核性肠球炎 (NEC) 是新生儿的严重胃肠道紧急情况,通常需要手术干预.
- 外科NEC幸存者的长期结果和生活质量 (QoL) 对于全面的患者护理至关重要.
- 了解外科NEC对患者的质量生活的影响,对于制定有针对性的支持策略至关重要.
研究的目的:
- 为了评估患者的长期生活质量 (QoL),这些患者已经接受了为死角 enterokolitis (NEC) 进行手术治疗.
- 为了比较NEC幸存者的QoL与年龄相匹配的健康对照.
- 评估短肠综合征 (SBS) 对NEC幸存者的QoL的影响.
主要方法:
- 进行了一项横截面研究,涉及2000年至2014年间接受了NEC手术的患者.
- 儿科生活质量库存 (PedsQLTM) 通用核心量表被用于 QoL 评估.
- 分析了数据,比较了父母代理和儿童报告的结果,并考虑了以前的SBS.
主要成果:
- 29名患者完成了调查,平均年龄为10岁;9人患有短肠综合征 (SBS).
- 家长评价的QOL分数是:整体86.4,身体95.3,心理社会82.5.5.
- 儿童评级的QoL得分是:整体82.1,身体96.9,心理81.7;根据之前的SBS,没有发现显著差异.
结论:
- 没有显著的并发症的外科NEC长期幸存者表现出与一般人群相比的QoL.
- 在NEC幸存者中,心理社会福祉可能是一个问题,需要进一步关注.
- 短肠综合征 (SBS) 的病史并没有显著影响这些患者的长期 QoL.
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