重构图雷特综合征中的耻辱:一个更新的范围审查
Kelly Pring1, Melina Malli2, Brandy W Hardy1
1Wake Forest University School of Medicine, Winston-Salem, NC, USA.
European child & adolescent psychiatry
|December 30, 2023
概括
包括图雷特综合征 (TS) 在内的患有持续性滴滴障碍 (PTD) 的年轻人在个人,人际关系,社区和结构层面面临着严重的耻辱. 这份综述强调了耻辱对他们的福祉和社会融入的影响.
科学领域:
- 神经发育障碍 神经发育障碍
- 社会心理学 社会心理学
- 公共卫生 公共卫生
背景情况:
- 持续性滴滴障碍 (PTD),如图雷特综合征 (TS),是患有童年发病的普遍神经发育疾病.
- 对于被诊断患有PTD的人来说,耻辱化仍然是一个重大和持续的挑战.
- 关于PTD污名化的先前研究在2016年进行了系统审查,需要进行更新的评估.
研究的目的:
- 自2016年以来对患有PTD的青少年的污名化研究进行更新的范围审查.
- 应用社会生态污名化模型来全面理解污名.
- 确定差距,并为旨在减少耻辱的未来干预提供信息.
主要方法:
- 进行了主要电子数据库 (Embase,科学网,PubMed,PsycINFO,CINAHL) 的系统搜索.
- 在选了4751篇文章的相关性后,包括了47项研究.
- 社会生态模型被用来分类和分析四个层面的污名化:个人,人际关系,社区和结构.
主要成果:
- 个人水平:报告了自尊心低下,对未来耻辱感的恐惧,回避行为和自我耻辱.
- 人际关系层面:观察到欺凌和虐待的比例增加.
- 社区和结构层面:学校/工作中的歧视性环境,有限的服务,缺乏医疗保健,以及公众意识/媒体代表性低.
结论:
- 患有PTD的年轻人经历了多方面的耻辱,影响了自尊,社会互动和获得资源的机会.
- 社会生态模型为理解广泛的耻辱感提供了一个强大的框架.
- 进一步的研究和有针对性的干预措施至关重要,以减轻耻辱对这一群体的不利影响.
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