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同行支持对多发性硬化症患者治疗坚持的影响:混合方法试点试验协议

Léonor Guilmault¹, Sandrine Wiertlewski², Lucie Malloggi¹

¹Service de santé publique, Nantes University Hospital, Nantes, France.

|December 30, 2023

概括

这项试点研究探讨了对多发性硬化症患者的同行支持,评估其可行性和可接受性. 结果将为更大的试验提供信息,以改善生活质量和治疗坚持.

科学领域:

神经学神经学
临床试验临床试验
患者支持患者支持

背景情况:

患者伙伴关系对于以患者为中心的护理至关重要.
个人同行支持可以提高患者的生活质量和治疗坚持.
对多发性硬化症 (MS) 患者的同行支持的好处仍然未被探索.

研究的目的:

评估MS患者医疗保健综合个人同行支持的可行性和可接受性.
评估在MS中进行同行支持干预的大规模疗效试验的可行性.

主要方法:

一个混合方法试点临床试验 (PAIR-SEP研究) 涉及60名复发性复发性MS患者.
随机分配到常规护理或常规护理,再加上五个月的三个个人同行支持会议.
通过面试和重点小组对坚持,生活质量,焦虑,抑郁和社会支持进行定量评估;通过面试和重点小组对接受度和可行性的定性评估.

主要成果:

当研究完成并可获得结果后,该部分应填写.

结论:

当研究完成并可获得结果后,该部分应填写.

关键词:

药物治疗药物治疗药物治疗药物治疗药物治疗药物治疗多发性硬化症是多发性硬化症.患者参与患者参与以患者为中心的护理生活质量生活的质量.

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