帕金森病患者和护理伙伴对息护理的看法
Sandhya Seshadri1, Megan Dini2, Jennifer Corcoran1
1Department of Neurology, University of Rochester, Rochester, NY, USA.
Parkinsonism & related disorders
|December 31, 2023
概括
帕金森病患者和护理伙伴希望得到综合性息治疗,特别是非运动症状和情绪支持. 教育和早期规划是改善生活质量的关键.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 神经学 神经学
- 以患者为中心的护理
背景情况:
- 门诊息治疗可以提高帕金森病 (PD) 患者和家人的生活质量.
- 关于患者和护理伙伴对息护理的知识和看法的理解有限.
研究的目的:
- 在实施之前,探索PD患者和护理伙伴对息治疗的知识,感知,需求和偏好.
- 为将门诊息治疗纳入标准PD护理提供信息.
主要方法:
- 定性描述性研究设计. 定性描述性研究设计.
- 与47名PD患者和护理伙伴进行的半结构面试.
- 对非标识面试成绩单进行主题分析.
主要成果:
- 确定了五个主题:多样化的息护理知识,非运动症状的挑战,情绪支持的重要性,护理伙伴对福祉和策略制定的需求,以及对预期指导的渴望.
- 患者和护理伙伴表达了普遍的护理需求,以解决他们的息需求,包括管理非运动症状和情绪困扰.
- 显而易见的是,人们对主动指导和护理规划的强烈愿望.
结论:
- 帕金森病患者和护理伙伴普遍寻求满足其特定需求的息治疗,尽管意识水平不同.
- 息护理教育和整合到常规护理中可以改善整个疾病过程中的接受和利用.
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