衡量对有医疗复杂性的儿童及其家人来说重要的事情
Greg Randolph1, Cara Coleman2, Carolyn Allshouse3
1Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Pediatrics
|January 2, 2024
概括
与家庭领导人合作,共同设计医疗复杂性儿童 (CMC) 增强护理系统的质量改善措施. 这种合作改善了CMC护理的测量策略,重点关注福祉和支持.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 提高儿童医疗保健质量 提高儿童医疗保健质量
- 以患者和家庭为中心的护理.
背景情况:
- 医疗复杂性儿童 (CMC) 需要协调,高质量的护理系统.
- 有效的质量改善 (QI) 策略需要纳入患者和家庭的观点.
- 合作改进和创新网络推进医疗复杂性儿童的护理 (CMC CoIIN) 优先考虑了家庭领导.
研究的目的:
- 检查与家庭领导人合作的关键经验,以共同设计CMC的定量QI措施.
- 确定和定义与CMC生活质量,福祉,未满足的健康需求和支持系统相关的措施.
- 了解家庭领导人的参与如何影响测量策略的开发.
主要方法:
- 从CMC CoIIN内的跨学科国家团队学习的定性检查.
- 与家庭领导人合作识别和定义定量化QI措施.
- 专注于包括生活质量,福祉,未满足需求,医疗家庭,患者和家庭参与以及共享护理计划在内的领域.
主要成果:
- 与家庭领袖的伙伴关系对于CMC CoIIN的测量策略至关重要.
- 与家长共同设计的措施显著提高了测量方法.
- 通过这种合作,为项目和州团队创造了独特的学习机会.
结论:
- 将家庭领袖纳入QI测量开发是改善CMC护理的关键.
- 代码设计方法导致更强大和更相关的测量策略.
- 以家庭为中心的测量提高了对有医疗复杂性的儿童的护理改进计划的整体有效性.
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