绘制关于人权和白化问题的研究,宣传和政策议程:一个混合方法项目
Sheryl Reimer-Kirkham1, Barbara Astle2, Ikponwosa Ero3
1Trinity Western University, 22500 University Drive, Langley, BC, V2Y 1Y, Canada. sheryl.kirkham@twu.ca.
International journal for equity in health
|January 3, 2024
概括
患有白化症的人面临着重大的人权挑战. 本研究确定了研究,宣传和政策的重点优先事项,以解决耻辱,歧视和有害做法,改善福祉和安全.
科学领域:
- 人权法 人权法 人权法
- 公共卫生 公共卫生
- 健康的社会决定因素
背景情况:
- 患有白化症的人面临多方面的挑战,包括视力障碍,皮肤癌,耻辱,歧视和严重的人权侵犯.
- 关于白白症和人权的研究是一个新兴领域,自联合国任命独立专家以来,它越来越受欢迎.
研究的目的:
- 确定和优先考虑研究,宣传和有关白痴人权的政策需求.
- 综合现有知识,并识别理解和实践中的差距.
主要方法:
- 一种混合方法的方法,将文献综合 (同行评审和灰色) 与基于Delphi的优先设定调查相结合.
- 通过与研究人员,政策制定者和民间社会利益相关方的圆桌讨论,通过专家协商一致.
主要成果:
- 虽然获得护理和教育是倡导和政策的既定需求,但研究重点关注的是耻辱,歧视和巫术,区域差异很大.
- 健康的社会决定因素,如农村,贫困和性别平等是基本因素,但不是主要的研究/政策重点.
- 解释性框架,特别是关于有害的做法和巫术,影响研究,宣传和政策的优先事项.
结论:
- 患有白化症的人的生活经历受到健康的社会决定因素的显著影响.
- 解决对福利和安全的威胁需要一个人权框架,考虑各种解释模型,包括文化和精神信仰.
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