照顾痴呆症和学习障碍患者的经验:定性系统审查
Michelle Hughes1, Kerry Hanna2, Akpevwoghene Wiles1
1Department of Primary Care and Mental Health, University of Liverpool, UK.
Dementia (London, England)
|January 3, 2024
概括
照顾有学习障碍和痴呆症的个体,面临着独特的挑战. 加强培训和支持对于家庭和正式照顾者来说至关重要,以改善生活质量.
科学领域:
- 老年学是一门学科.
- 神经科学是一个神经科学.
- 关于残疾人的研究.
背景情况:
- 学习障碍 (LD) 个人的预期寿命增加导致该人口中痴呆的患病率更高.
- 痴呆症对家庭和正式的LD护理人员来说都带来了复杂的挑战,影响了护理接受者的生活质量.
- 本综述侧重于护理人员的经验和需求,这些护理人员支持患有同时出现的LD和痴呆症的人.
研究的目的:
- 系统地审查和综合有关家庭和正式照顾者的经验和需求的定性证据.
- 确定与学习障碍和痴呆症患者的护理人员面临的挑战和支持系统相关的关键主题.
主要方法:
- 进行了定性系统审查.
- 在2022年5月,在六个电子数据库 (PubMed,PsycINFO,Cochrane Library,Prospero,Scopus,CINAHL) 进行了搜索.
- 审查中包括了13篇符合纳入标准的论文.
主要成果:
- 主题综合确定了四个关键主题:知识和技能,获得支持,痴呆症对照顾者的影响以及照顾角色连续性的影响.
- 确定了所有护理人员的重大培训和教育需求.
- 在家庭和正式照顾者之间,在组织支持方面注意到了差异.
结论:
- 对于同时出现痴呆症和学习障碍的人的护理人员,有必要改善培训和教育.
- 实现跨服务的平等性和确保足够的护理人员培训可以提高痴呆症诊断和护理质量.
- 需要进一步的研究来解决环境和经济障碍,以促进护理受益人的"现场老龄化".
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