开发和测试慢性病患者体验映射工具箱的开发和测试
Elisabeth M Oehrlein1,2, Silke Schoch3, Kelsie Majercak3
1National Health Council, 1730 M St. NW Suite 650, Washington, DC, 20036, USA. eoehrlein@appliedpx.com.
The patient
|January 3, 2024
概括
研究人员开发了一个疾病不可知患者参与工具箱,以收集高质量的患者体验数据. 该工具有助于了解患者的优先事项,并加强医疗保健研究和提供.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
- 定性研究方法 定性研究方法
背景情况:
- 在研究和医疗保健提供中,对患者体验数据的需求日益增加.
- 缺乏标准化工具来系统地收集患者体验信息.
- 需要寻找方法,让患者与他们健康旅程进行对话.
研究的目的:
- 开发和测试一种疾病不可知工具箱,用于患者参与.
- 为研究人员创建面试指南模板和资源.
- 为了促进收集高质量的患者体验数据.
主要方法:
- 文献综述和多学科工作组讨论.
- 开发一个概念模型和面试指南模板.
- 与患有慢性疾病的患者进行认知和试点测试.
主要成果:
- 患者体验概念的主题组织成三个领域:预诊断,诊断和与诊断生活.
- 开发和修订一个简单的语言同意表,面试指南和概念模型.
- 成功测试和改进面向患者的工具.
结论:
- 创建了一个经过验证的,疾病不可知的患者参与工具箱.
- 工具箱可以定制,以捕获各种患者体验数据.
- 本资源支持在医疗保健研究和实践中加强以患者为中心.
相关概念视频
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