社区驱动的土著儿童健康研究的文化适当的同意流程:范围审查
Cindy Peltier1, Sarah Dickson2, Viviane Grandpierre2
1Schulich School of Education, Nipissing University, North Bay, ON, Canada. cindyp@nipissingu.ca.
BMC medical ethics
|January 3, 2024
概括
加拿大需要文化安全的同意程序,以确保土著儿童和青少年获得公平的研究机会. 本次审查强调了社区驱动的关系式方法的重要性,这些方法尊重土著的价值观和协议.
科学领域:
- 土著健康研究土著健康研究
- 生物伦理学生物伦理学
- 研究伦理学研究伦理学
背景情况:
- 加拿大当前的伦理研究标准,就像签名的父母同意一样,为土著儿童和青年创造了不平等.
- 这些标准可能会限制土著人口获得重要的研究机会和健康查.
- 有必要确定和实施文化安全的同意流程.
研究的目的:
- 检查文化安全研究同意流程的现有文献.
- 确定尊重土著儿童权利,父母/照顾者的责任和社区协议的方法.
- 解决土著青年参与研究方面的不平等问题.
主要方法:
- 按照PRISMA和Arksey/O'Malley的指导方针进行系统的文献审查.
- 搜索了多个数据库,包括MEDLINE,PsycINFO,CINAHL和土著特定的收藏.
- 包括2000-2022年的同行评审文章,使用双眼见解方法和主题分析进行分析.
主要成果:
- 包括11项研究,揭示了三个关键建议:解决伦理紧张局势,采用明智的做法,使用关系同意方法.
- 伦理紧张关系源于文化上不合适的研究伦理委员会要求.
- 智慧实践包括共同的亲子同意,基于土地的同意和社区参与;关系型方法强调社区参与和关系建设.
结论:
- 很少有研究专门讨论土著社区内儿童同意的问题.
- 需要社区驱动的,非殖民化的同意流程,优先考虑土著价值观和协议.
- 进一步的研究是必不可少的,以使原住民同意流程成为可操作的,以便为土著儿童提供平等的研究和服务.
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