在复杂的干预研究中成功地参与患者合作伙伴的建议:一个协作学习过程
Pernille Christiansen Skovlund1,2,3, Jeanette Finderup4,5,6, Sanne Aabo4
1Department of Oncology, Aarhus University Hospital, Palle Juul-Jensens Boulevard 99, 8200, Aarhus N, Denmark. pernskov@rm.dk.
Research involvement and engagement
|January 3, 2024
概括
患者和公众参与健康研究面临着时间和沟通等挑战. 制定具体的计划,伦理准则和国家战略可以促进成功的患者与研究人员的合作伙伴关系.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与 (PPI)
- 复杂干预研究 复杂干预研究
背景情况:
- 患者和公众参与健康研究是丹麦的一个新兴领域.
- 2021年的一次会议的重点是让患者成为复杂干预研究的合作伙伴.
研究的目的:
- 确定患者伙伴参与复杂干预研究的挑战和举措.
- 为建立成功的患者与研究人员伙伴关系制定建议.
主要方法:
- 一个合作学习过程,涉及140名研究人员.
- 一个与四个患者合作伙伴的研讨会,从他们的角度确定挑战和倡议.
- 患者合作伙伴对研究人员发现的问题和举措的反.
主要成果:
- 研究人员将时间,招聘,道德,权力和不平等确定为关键挑战.
- 患者合作伙伴强调了沟通,信息处理和招聘方面的挑战.
- 患者合作伙伴证实了研究人员发现的挑战,并为制定建议做出了贡献.
结论:
- 协作式学习方法对于患者的合作伙伴参与是有效的.
- 制定了三个关键建议:具体的参与计划,道德准则和国家战略.
- 建议举行联合研讨会,以进一步制定这些建议.
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