患者和护理人员之间关于青少年脊柱病讨论论坛的信息交流:主题分析
Ambika E Paulson1, Jeffrey E Martus2, Gregory A Mencio2
1Department of Orthopedic Surgery, Vanderbilt University Medical Center, 2200 Children's Way, Suite 4202, Nashville, TN, 37232, USA. ambika.e.paulson@vumc.org.
在线脊椎病支持小组为患者和护理人员提供宝贵的情感支持和信息. 这些论坛是一个安全的空间,医疗错误信息最小,可以由医生推.
科学领域:
- 整形外科 整形外科 整形外科
- 患者支持系统 患者支持系统
- 在线健康社区 在线健康社区
背景情况:
- 患者和护理人员越来越多地利用在线健康论坛获得支持.
- 这些论坛的内容和主题,特别是脊椎病,对于医疗专业人士来说基本上是未知的.
研究的目的:
- 识别与患者和护理人员经验相关的线上脊椎病讨论论坛的共同主题.
- 分析这些主题在儿科患者,成人患者和护理人员之间有什么不同.
主要方法:
- 从两个公共脊椎病论坛的911帖子的定性分析,使用接地理论.
- 帖子被编码和分类,以确定反复出现的概念和中心主题.
- 一位骨科外科医生审查了医疗准确性和错误信息的帖子.
主要成果:
- 从分析中出现了五个核心主题.
- 情绪支持和手术治疗信息是成年患者 (≥18) 和护理人员的关键主题.
- 儿科患者 (<18岁) 也寻求情感支持和关于支架的信息.
- 在所有用户群体中,情感支持是最常见的主题.
- 在分析的帖子中检测到最小的医学错误信息.
结论:
- 脊柱病论坛提供了一个重要的非正式平台,为患者和家人提供情感支持和分享经验.
- 医生可以自信地推这些论坛作为资源.
- 直接医生提供的情感支持仍然至关重要,补充了在线社区的好处.
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