为代表性不足的种族和民族人口提供社区参与策略
Folakemi T Odedina1, Mark L Wieland2, Kim Barbel-Johnson1
1Mayo Clinic Comprehensive Cancer Center, Mayo Clinic, Jacksonville, FL.
Mayo Clinic proceedings
|January 4, 2024
概括
确保临床试验中的多元化代表性对于健康公平至关重要. 通过社区参与和公平伙伴关系解决障碍,可以改善代表性不足的种族和少数民族人口的参与.
科学领域:
- 健康 公平 卫生 公平
- 临床试验 研究 研究 临床试验 临床试验
- 健康差异 在健康上的差异
背景情况:
- 种族和少数民族人口在临床试验中的代表性仍然不足,导致健康差异.
- 尽管有努力,但在不同群体的临床试验参与方面仍然存在很大的差距.
- 研究缺乏多样性导致健康状况较差,并使不平等现象延续下去.
研究的目的:
- 识别和解决临床试验中的挑战,为代表性不足的人群参与.
- 阐述参与式研究和社区参与的最佳实践.
- 通过定制的研究合作,促进临床试验中的公平.
主要方法:
- 定义社区角色和确定强大的社区合作伙伴.
- 探索患者和提供者层面的参与障碍和促进者的参与.
- 分析研究人员和社区合作伙伴之间的权力动态.
- 检查研究设计和组织结构中的偏见.
主要成果:
- 有效的社区参与需要明确的角色定义和强大的伙伴关系.
- 解决患者和提供者障碍对于增加参与至关重要.
- 了解和平衡权力动态是公平合作的关键.
- 组织变革和透明的关系是包容性所必需的.
结论:
- 针对研究合作的定制蓝图对于在临床试验中实现真正的公平是必不可少的.
- 包括结果传播在内的全面的社区参与至关重要.
- 调查人员,机构和社区合作伙伴必须为包容性研究合作.
相关概念视频
Community Based Intervention
43
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
43
Surveys
14.8K
Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
14.8K
Ethnic Identity within a Larger Culture
33
Adolescents from ethnic minority backgrounds face a multifaceted journey in forming their identities, shaped by the intersections of cultural expectations and personal exploration. For these adolescents, identity formation involves not only typical developmental challenges but also navigating the perceptions and attitudes of the majority culture. As they grow, adolescents in ethnic minority groups often become increasingly aware of stereotypes, social biases, and discrimination, all of which...
33
Stereotypes, Prejudice, and Discrimination
90.2K
Humans are very diverse and although we share many similarities, we also have many differences. The social groups we belong to help form our identities (Tajfel, 1974). These differences may be difficult for some people to reconcile, which may lead to prejudice toward people who are different. Prejudice is a negative attitude and feeling toward an individual based solely on one’s membership in a particular social group (Allport, 1954; Brown, 2010). Prejudice is common against people who...
90.2K
Persuasion Strategies
38.6K
Researchers have tested many persuasion strategies, including the foot-in-the door and the door-in-the-face techniques, in a variety of contexts. Ultimately, the principles are effective in selling products and changing people’s attitude, ideas, and behaviors (Cialdini & Goldstein, 2004).
38.6K
Strategies for Assessing and Addressing Confounding
102
Confounding is a critical issue in epidemiological studies, often leading to misleading conclusions about associations between exposures and outcomes. It occurs when the relationship between the exposure and the outcome is mixed with the effects of other factors that influence the outcome. Given that, addressing confounding is of high importance for drawing accurate inferences in research.
Confounding can be addressed at both the design phase of a study and through analytical methods after data...
Confounding can be addressed at both the design phase of a study and through analytical methods after data...
102


