尊严治疗对肌缩性侧面硬化症患者的影响:案例研究
Mariana do Valle Meira1, Rudval Souza da Silva1,2, Harvey Max Chochinov3
1Postgraduate Programme in Nursing and Health, Nursing School at the Federal University of Bahia, Salvador, Bahia, Brazil.
Palliative & supportive care
|January 4, 2024
概括
尊严疗法 (DT) 改善了肌缩性侧面硬化症 (ALS) 患者的身体,存在和心理社会症状. 患者报告说,尊严增强,疼痛和疲劳减少,以及更大的生命意义感.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 抚慰性护理是一种缓解性护理.
背景情况:
- 肌缩性侧面硬化症 (ALS) 带来了重大的身体,存在和心理社会挑战.
- 管理这些多方面的症状对于改善ALS患者的生活质量至关重要.
研究的目的:
- 研究尊严疗法 (DT) 对被诊断患有ALS的患者的身体,存在和心理社会福祉的影响.
- 评估疼痛,疲劳,焦虑,抑郁和精神健康等症状的变化.
主要方法:
- 采用混合方法的案例研究设计,涉及3名ALS患者.
- 数据采集使用经过验证的身体症状,焦虑,抑郁,精神健康和患者尊严库存 (PDI) 的计量表.
- 干预后进行了半结构面试,以收集定性见解.
主要成果:
- 测量结果表明,在DT之后,身体,社会,情感,精神和存在症状领域的改善.
- 患者尊严库存 (PDI) 评分显示所有参与者的尊严都有所提高.
- 定性报告证实了定量发现,参与者指出减少了疼痛和疲劳,并重新意识到生命的价值.
结论:
- 尊严疗法 (DT) 对患有ALS的人来说具有潜在的益处,解决了一系列的身体,存在和心理社会症状.
- 治疗促进了对生活轨迹的反思,并恢复了个人价值和意义.
- 在ALS患者的息治疗中,DT可以作为一种有价值的支持性干预.
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