国家患者门户网站用户的隐私问题:一项跨部门人口调查研究
Maiju Kyytsönen1, Tuulikki Vehko2, Virpi Jylhä3
1Finnish Institute for Health and Welfare, P.O. Box 30, FI-00271 Helsinki, Finland; University of Eastern Finland, P.O. Box 1627, FI-70211 Kuopio, Finland.
International journal of medical informatics
|January 6, 2024
概括
患者门户用户经常对隐私问题感到担忧,尤其是老年人和面临财务困难的人. 数字技能和感知到的远程医疗好处减少了这些担忧,突出了用户支持和透明数据实践的需要.
科学领域:
- 医疗信息学 医疗信息学
- 数字健康数字健康
- 患者的隐私 患者的隐私
背景情况:
- 电子健康记录 (EHR) 存储敏感的个人健康数据.
- 将患者隐私与医疗保健需求和二次数据使用之间的平衡至关重要.
- 数据保护,安全,伦理和法律框架管理健康信息流.
研究的目的:
- 调查国家患者门户网站用户的隐私问题.
- 在代表性成年人群中确定与隐私问题相关的因素.
主要方法:
- 2020年从3,731名芬兰成年人中收集的跨部门调查数据.
- 使用人口权重的物流回归分析用于识别相关因素.
主要成果:
- 大约三分之一的患者门户用户表示隐私问题.
- 老年人 (50-59岁) 和有经济困难的个人表现出更高的隐私问题.
- 良好的数字技能,感知到远程医疗的好处,不需要远程医疗指导与较低的隐私问题相关联.
结论:
- 远程医疗的实用性和用户的数字技能显著影响了隐私问题.
- 建议提供远程医疗使用指南和透明的隐私信息.
- 加强远程医疗服务中的数据保护和信息安全对于解决常见隐私问题至关重要.
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