叙事的力量:一个案例研究关于记录私人洞察力经验,同时处理疼痛和相关的残疾
S F Lakha1,2, S F Sohail1, C B Holtzman1
1Inclusive Media and Design Centre, Ted Rogers School of information Technology Management, Toronto Metropolitan University, Toronto, ON, Canada.
Frontiers in digital health
|January 8, 2024
概括
这个案例研究表明,一个数字健康平台MyHealthMyRecord (MHMR) 可以帮助慢性疼痛患者记录他们的经历. MHMR使用户能够记录他们旅行的私人音频视频,有助于应对和寻求支持.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 患者体验 患者体验
背景情况:
- 患有慢性疾病的个人,如慢性疼痛,需要社会支持系统.
- 卫生系统在帮助慢性病患者方面发挥着至关重要的作用.
- 数字健康平台为支持和资源管理提供了新的途径.
研究的目的:
- 描述使用数字健康平台MyHealthMyRecord (MHMR),用于治疗慢性疼痛的个人.
- 评估记录和策划慢性疾病的个人经历的可行性.
- 探索MHMR在慢性疼痛患者寻求住宿的旅程中的实用性.
主要方法:
- 采用一个案例研究方法,利用MHMR平台的原型版本.
- 一位患有慢性疼痛症的参与者共同设计师在三个月内录制了短视频音频.
- 使用开放编码的定性主题分析用于分析记录的内容.
主要成果:
- 记录了65个音频视频贡献,记录了各种经验.
- 主题分析确定了三个领域:面向人,可访问性和面向系统.
- 疼痛和压力是最经常记录的主题 (75%),而技术和治疗主题是最不常见的 (3%和9%).
结论:
- MHMR平台可以促进记录个体健康和福祉的多方面方面.
- 它可以记录慢性病的影响和相关因素,如可访问性.
- 未来的发展包括注释,自动化分析,总结和纵向评估与更多的用户.
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